Ehlers-Danlos Syndrome
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Location: http://ednf.org
EDS affects all cells in the body, with pronounced effects in ligaments, joints, blood vessels, internal organs and skin. It can affect each type of tissue differently, creating unusual qualities such stretchiness in some tissues and fragility in others.
Due to its complicated and variable presentations -- which can differ significantly from one patient to the next, even in the same family -- EDS is poorly recognized and poorly understood. Details of the condition are still misrepresented in many medical education resources, therefore clarification of the facts through a reputable and focused source is essential for medical professionals who wish to understand this painful and debilitating disease.
This independent writer recommends reading medical articles published in peer-reviewed journals by Clair Francomano, M.D. and Nazli McDonnell, M.D., Ph.D., who are considered world-class experts in HDCTs; and studying information presented on the website maintained by the Ehlers-Danlos National Foundation.
Type: Reference Material
Author/Contact: SJ Rodgers
Institution: Rodgers Center for Educational Therapy
Primary Subject/Category:
- - OCOSH Classification: Collagen Diseases: Ehlers-Danlos Syndrome
- - Patient Information: Childrens Orthopaedics
Submitted by: ZipperedZebra
Hits: 1030
Added: Tue Jun 09 2009
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